Posts made by Sarah

Re: Chaging from CPAP to BiPAP

Hey Carolyn. I was just on a PWDA forum where they announced RATS now can be claimed through NDIS. I'm sure your work played some part in that well done.

Hi Admins there seems to have been some recent activity where articles are being deleted. Can you let us know what the process is there. An auto email is sent just saying deleted with no reason given. Is this the correct process?

Hey all just reading the great article with Carolyn in the guardian voicing what are all of our concerns at the moment. https://www.theguardian.com/australia-news/2022/jan/20/woman-living-with-muscular-dystrophy-forced-to-spend-1300-on-rapid-antigen-tests-for-in-home-carers?fbclid=IwAR0aHNS0sO8Dco8DpPc81sql-1ex9djX--kPkU13o_neSsr3MyWLeFO0r5Y. How is everyone coping currently?

Looking for a shoutout on how people manage their Bipap machines in the event of an electrical outage. What fail over systems have you got going? What works for you.

Hi Carolyn, I'm so glad it is working out for you. I'm doing okay been a bit busy working on a few projects at the moment. We do need to get more people on here.

@CrazyGardenLady No but it looks amazing have you been able to give it a go?

@Carolyn hey Carolyn just checking in on how you are going. I hope your now having no issues and it is now routine.

@Carolyn Hi Carolyn, sorry for disappearing for a while. I have an Invacare Storm. My second one of the same type just with a few more add on this time. I'd love a pedometer though. That sounds like a great thing to have.

@Nadelle-M All the time. That is why we travel with bed extenders and also use sites like accessible accommodation and have wheelchair will travel to get feedback from other people who have stayed there. https://www.accessibleaccommodation.com.au/?gclid=EAIaIQobChMI1v__zfT46QIVy34rCh21QQKLEAAYASAAEgKmr_D_BwE, https://havewheelchairwilltravel.net/. If going somewhere it is worth asking either of those communities if someone else has been there.

@Sarah Hey Carolyn no went straight to Bipap. I guess though Cpap is a continuous stream of air. Bipap you have the push and pull so would be a very different feel.

What do you love about your current chair and what doesn't work as well as it could?

I got a new power wheelchair in December and the things I love about the new chair are. GPS on the new chair. I didn't have this on my old chair and everytime I went over an uneven surface I would drift and feel as if I wasn't in control of the chair. GPS removes that feeling and the need to constantly correct. It also makes reversing backwards down hills doable. So I love love love my GPS. Second thing was lights which I didn't even really know I would need until I was talked into them. If you get out and about having lights that you can switch on helps a lot. Third thing is the second set of controls for tilt and elevate sitting under my arm rests. So much easier then having to constantly use the hand control and switch modes etc. Mine is just velcroed under the armrest so they don't stick out at all.

These are my new loves, I was already in love with tilt and elevate.

No real dislikes for this one.

What are you loving or hating about your chair?

And is there a reason palliative care is continually displying in the Wellness section?

Hey Carolyn, I've been on a Bipap for about five years but can vividly remember having to get used to it. The nurse at the sleep clinic gave me the honest truth when she said "You will hate this and it will feel terrible for a couple of weeks." It did feel awful and like nothing I had ever experienced up till then. It only took a couple of weeks though and now unless I have a leak I really cannot feel it anymore. I can certainly feel when I don't have it on though. I've had to up the pressure settings a couple of times since I started. Good luck with yours. Sarah.

Thanks for the tip.

This is great. Is there anyway Scott would like to put in an article promoting his content in the Travel section? I'm finding the Accessible accommodation really useful as it also provides short videos for people looking for accommodation. https://www.accessibleaccommodation.com.au/. Have Wheelchair will travel is also a good resource. It would be great if Scott could show us how his wheelchair copes with space around the beds etc.

Hi Angela, Is this as their primary wheelchair? The cons for me when looking at these is their bulkiness and ability to get under ordinary tables etc and how much room they need to be transported. I'm a suburban wheelchair user who doesn't go off paved surfaces all that often and who has to transport my chair regularly. If those were not considerations though a all terrain would be very attractive to me. As you can swap out backrests and cushions with most of them comfort really comes down to trying a variety of set ups like any other chair. Sarah