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    Sarah

    @Sarah

    I'm one of the many people with a muscle wasting condition that hasn't quite got a name yet or official diagnosis, I live with my wife and Friday our furry companion. I first started to notice changes in my body in 2008 so I have been living with this degenerative condition for more than a decade now. I have used a wheelchair as my mode of getting around since 2014. I love getting out and about in the community and am interested in Theatre, Music and the Arts. I also keep an eagle eye on what is happening in current affairs across the country. I worked in the Federal Public Service for twenty-six years and retired due to invalidity about two years ago.

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    Location Brisbane

    Sarah Follow
    South East Queensland

    Best posts made by Sarah

    • RE: Chaging from CPAP to BiPAP

      Hey Carolyn, I've been on a Bipap for about five years but can vividly remember having to get used to it. The nurse at the sleep clinic gave me the honest truth when she said "You will hate this and it will feel terrible for a couple of weeks." It did feel awful and like nothing I had ever experienced up till then. It only took a couple of weeks though and now unless I have a leak I really cannot feel it anymore. I can certainly feel when I don't have it on though. I've had to up the pressure settings a couple of times since I started. Good luck with yours. Sarah.

      posted in Equipment
      S
      Sarah
    • RE: Accessible Hotel Accommodation

      @Nadelle-M All the time. That is why we travel with bed extenders and also use sites like accessible accommodation and have wheelchair will travel to get feedback from other people who have stayed there. https://www.accessibleaccommodation.com.au/?gclid=EAIaIQobChMI1v__zfT46QIVy34rCh21QQKLEAAYASAAEgKmr_D_BwE, https://havewheelchairwilltravel.net/. If going somewhere it is worth asking either of those communities if someone else has been there.

      posted in Travel
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      Sarah
    • RE: All Terrain Powerchair Recommendations wanted

      Hi Angela, Is this as their primary wheelchair? The cons for me when looking at these is their bulkiness and ability to get under ordinary tables etc and how much room they need to be transported. I'm a suburban wheelchair user who doesn't go off paved surfaces all that often and who has to transport my chair regularly. If those were not considerations though a all terrain would be very attractive to me. As you can swap out backrests and cushions with most of them comfort really comes down to trying a variety of set ups like any other chair. Sarah

      posted in Equipment
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      Sarah
    • RE: Chaging from CPAP to BiPAP

      @Carolyn hey Carolyn just checking in on how you are going. I hope your now having no issues and it is now routine.

      posted in Equipment
      S
      Sarah
    • Great work with the RATS guardian article

      Re: Chaging from CPAP to BiPAP

      Hey Carolyn. I was just on a PWDA forum where they announced RATS now can be claimed through NDIS. I'm sure your work played some part in that well done.

      posted in Equipment
      S
      Sarah

    Latest posts made by Sarah

    • Great work with the RATS guardian article

      Re: Chaging from CPAP to BiPAP

      Hey Carolyn. I was just on a PWDA forum where they announced RATS now can be claimed through NDIS. I'm sure your work played some part in that well done.

      posted in Equipment
      S
      Sarah
    • Deleted articles

      Hi Admins there seems to have been some recent activity where articles are being deleted. Can you let us know what the process is there. An auto email is sent just saying deleted with no reason given. Is this the correct process?

      posted in General feedback and comments
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      Sarah
    • Coping with covid

      Hey all just reading the great article with Carolyn in the guardian voicing what are all of our concerns at the moment. https://www.theguardian.com/australia-news/2022/jan/20/woman-living-with-muscular-dystrophy-forced-to-spend-1300-on-rapid-antigen-tests-for-in-home-carers?fbclid=IwAR0aHNS0sO8Dco8DpPc81sql-1ex9djX--kPkU13o_neSsr3MyWLeFO0r5Y. How is everyone coping currently?

      posted in Wellness
      S
      Sarah
    • Generators

      Looking for a shoutout on how people manage their Bipap machines in the event of an electrical outage. What fail over systems have you got going? What works for you.

      posted in Equipment
      S
      Sarah
    • RE: Chaging from CPAP to BiPAP

      Hi Carolyn, I'm so glad it is working out for you. I'm doing okay been a bit busy working on a few projects at the moment. We do need to get more people on here.

      posted in Equipment
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      Sarah
    • RE: Sailability

      @CrazyGardenLady No but it looks amazing have you been able to give it a go?

      posted in Recreation
      S
      Sarah
    • RE: Chaging from CPAP to BiPAP

      @Carolyn hey Carolyn just checking in on how you are going. I hope your now having no issues and it is now routine.

      posted in Equipment
      S
      Sarah
    • RE: Power Wheelchair Users

      @Carolyn Hi Carolyn, sorry for disappearing for a while. I have an Invacare Storm. My second one of the same type just with a few more add on this time. I'd love a pedometer though. That sounds like a great thing to have.

      posted in Equipment
      S
      Sarah
    • RE: Accessible Hotel Accommodation

      @Nadelle-M All the time. That is why we travel with bed extenders and also use sites like accessible accommodation and have wheelchair will travel to get feedback from other people who have stayed there. https://www.accessibleaccommodation.com.au/?gclid=EAIaIQobChMI1v__zfT46QIVy34rCh21QQKLEAAYASAAEgKmr_D_BwE, https://havewheelchairwilltravel.net/. If going somewhere it is worth asking either of those communities if someone else has been there.

      posted in Travel
      S
      Sarah
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