FSHD Global - Cure FSHD App
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Thought this might be of interest to those with FSHD.
https://youtu.be/xhHyM2oaABE?feature=shared
https://player.captivate.fm/episode/cf3be579-742e-4686-b5f2-601d77d58967
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Thanks so much for sharing @Georgia
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@TheLoopAus Pleasure!
It's important to note that this is a patient led registery to be "clinical trial ready" and part of the Treat NMD global registry framework. Thank you FSHD Global Research Foundation